The state of America’s direct support workforce crisis 2025. ANCOR.

Citation: ANCOR. (2025). The state of America’s direct support workforce crisis 2025. American Network of Community Options and Resources. https://www.ancor.org/wp-content/uploads/2025/10/The-State-of-Americas-Direct-Support-Workforce-Crisis-2025.pdf   Summary: The report presents findings from ANCOR’s 2025 survey of disability service providers, revealing persistent staffing shortages among direct support professionals (DSPs), high turnover and vacancy rates, and widespread program cuts, while offering recommendations to strengthen recruitment and retention […]

Caregiving in the U.S. 2025. AARP and National Alliance for Caregiving.

Citation: AARP & National Alliance for Caregiving. (2025). Caregiving in the U.S. 2025. AARP Research. https://www.aarp.org/pri/topics/ltss/family-caregiving/caregiving-in-the-us-2025-caring-across-states/  Summary: This comprehensive national survey provides current data on family caregiving in the United States, including caregiver demographics, caregiving activities, challenges, and support needs. The report documents trends in caregiver experiences and identifies emerging issues. The findings inform policy development and program design for both traditional and self-directed […]

“Anything that Benefits the Workers Should Benefit the Client”: Opportunities and Constraints in Self-Directed Care During the COVID-19 Pandemic. Journal of Applied Gerontology. 

Citation: Wendel, C. L., LaPierre, T. A., Sullivan, D. L., Babitzke, J., Swartzendruber, L., Barta, T., & Olds, D. M. (2023). “Anything that Benefits the Workers Should Benefit the Client”: Opportunities and Constraints in Self-Directed Care During the COVID-19 Pandemic. Journal of applied gerontology: the Official Journal of the Southern Gerontological Society, 42(4), 524–535. https://doi.org/10.1177/07334648221143604   Summary: This qualitative study explores the perspectives of workers and clients […]

Public health’s roles in sustaining informal and family caregivers. Trust for America’s Health.

Citation: Wolf, D. A. (2025). Public health’s roles in sustaining informal and family caregivers. Trust for America’s Health. https://www.tfah.org/wp-content/uploads/2025/09/TFAH-Caregiving-Brief-FINAL-1.pdf   Summary: This policy brief outlines public health’s role in supporting informal and family caregivers. It identifies evidence-based interventions, policy approaches, and public health strategies that can strengthen caregiver capacity and prevent caregiver burnout.  

Measuring the adequacy of the direct-care workforce and impacts on unmet need: Landscape scan of data sources and opportunities for future research. Brandeis University.

Citation: Wu, C., Rowe, N., & Medland, S. (2019). Measuring the adequacy of the direct-care workforce and impacts on unmet need: Landscape scan of data sources and opportunities for future research. Community Living Policy & Practice for Social Policy and Management, Brandeis University. https://heller.brandeis.edu/community-living-policy/research-policy/pdfs/briefs/measuring-and-monitoring-adequacy-of-the-dcw.pdf  Summary: This landscape scan reviews existing data sources and methodologies for measuring direct-care workforce adequacy and […]

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